hair loss story

Hair Loss at The Age of 20 – Veronica’s Hair Loss Story

by Y on October 11, 2007

Hair Loss At The Age Of 20 - Veronica's Hair Loss StoryWow, I’m so happy I just found this site…I’m 20 years old, have had been genetic hair loss for four years now. About 2 years ago I had a biopsy done and my derm told me it was probably genetic, he put me on Rogaine, Spiro and Yasmin. I was on those meds for about a year… and they did absolutely nothing. Last year in the fall my hair loss was getting really bad and I was getting so desperate for something, so I spent over $1000 on getting Invisible Hair extensions. I was assured by so many people that they would be safe, and definitely the perfect solution. The extensions were great! I loved having so much hair and planned on having the extensions put back in. Well when I got them removed for the first time I was SO devastated, more than half of my already thin hair was gone.

Its been since January now since I’ve had them out and I feel like I’ve hit the bottom. I’m in college and can’t concentrate on anything. I’m always way too focused on everyone else’s hair and I feel like I’ll never feel normal again…I haven’t been able to wear my hair down since I got the extensions taken out. My poor hair is
still falling out like crazy… it’s so thin I can’t even wear it in a ponytail, I feel like I will be bald soon.

I’m so scared, nobody seems to understand. My best friend and my family just tells me to cope with it like its no big deal. I feel like I have no where to turn. That’s why I was so glad I found this forum…I really sometimes feel like I’m the only one experiencing this and it’s comforting to hear everyone’s story. I’m not sure what to do with myself, I hate going out, even going to school because I just feel so ashamed…I don’t even know where to start looking for a wig around here (I’m from Portland, OR). And I feel like seeing another doctor would also be pointless. Anyways, Thanks a lot for listening to my story.

~Veronica

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Dear Veronica,

Thank you for writing and sharing your story, I’m so sorry you are having to go through this. It probably is of mild comfort, but know you definitely are not alone and there are A LOT of women who start to lose their hair at young age. Who knew? I definitely didn’t until I started going through it. Here comes my usual disclaimer I provide on every question I respond to. I am not a doctor and cannot provide medical advice or treatment, this is just my opinion. Ok…

After reading your story I have so many questions. Did your dermatologist put you on Rogaine, Spiro and Yasmin all at the same time? You said you are 20 and have been experiencing hair loss for 4 years, so you started losing your hair at 16 and saw your doctor at 18. Did he provide any explanation as to what might have trigged your hair loss at such a young age? You stated that after a year the medications did nothing, but you didn’t say whether or not you stayed on them or took yourself off. I’m curious because if you took yourself off after a year and the following year noticed a rapid decline in your hair, then perhaps the drugs were doing more than you thought. Sometimes all the drugs can do is slow the hair loss process down and help you maintain the hair you have,. Not all women experience a phenomenal regrowth after treatment. Even after I started treatment, I never regained the hair I had and was pretty convinced the treatments weren’t working so I eventually took myself off of aldactone around 2003… I think. The dates get fuzzy. Anyways, my hair loss increased dramatically. That could have just been from getting off the drug and it may have re-stablized eventually, but that scared me enough to get back on. Not only did I get back on aldactone, but when I got back on, I had my dose increased from 100mg to 200mg a day.

If you would have asked me then about my hair, I would have complained about the hair I once had and that it was so thin and continuing to fall out. But looking back it was doing fairly well after the 200mg increase. [click to continue…]

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Female Pattern Balding – Hair Loss Story

by Y on October 8, 2007

I did not notice hair falling out, it just stopped growing and the dermatologist said it was female patter baldness and nothing could be done. I had take Prempro for 11 years without a missed day – per GYN to stop my periods. I was 50 at the time. Went through an extremely stressful divorce and work situation. I noticed the balding when I was about 59, and it has gotten worse…..my scalp showed through no matter how I tried to cover it. Since I was told I was not a good candidate for transplants, I got an epiphany. I went to a women who does permanent make-up and had her tattoo the areas (with a sort of light brown – I am blond) that aways showed through. It works quite well, but is very expensive and takes a long time to do. I had about 5 sessions of 1 – 2 hours. I was able to get novacaine after the first two-hour session, so the pain was managed. I still have some areas to cover, but it is a great improvement.There is no hair loss like this on either side of my family. I have taken some of the medications listed that cause hair loss, but what can you do if you need them? I am now 70 and hate my very thin hair, which used to be one of my best features.

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Hi –

Thanks for writing, I realize hair loss at any age is distressing, but I have to say you are so fortunate to have spent the majority of your life with hair and not dealing with the massive shedding and hair loss that many very young women experience today. For myself, I basically spent my entire 20’s in partial seclusion, feeling very sad and depressed, feeling like I’ve lost who I was… my identity. I wrote in the past post, “Hair Loss, Hair Loss Everywhere – What’s in the water?” that I would seal that deal immediately if I was told I could have all my hair back and then at 50 it would all fall out and I’d definitely do it for 60, even better. That would mean I’d get to have 31 more years of peace, of happiness, being out there and enjoying my youth. I feel I’m letting that slip away, losing my hair 8 years ago did that to me, but I work on myself all the time and trying to get past the whole idea of ” I am not my hair” and just trying to be positive.

Please understand I am not at all dismissing your concerns and I really do understand hair loss and how it would affect anyone who becomes afflicted with it, but I thought I would point out how fortunate you have been. Your tattoo idea was extremely creative, and I’m glad to hear you are happy with the results, but there also are less invasive ways to conceal the scalp. There are several products are on the market today that are actually a sort head make up that serve as a scalp cosmetic concealer. Two that I am aware of our DermMatch and Toppik. DermMatch and Toppik Scalp Cosmetic Concealer

Also, you are right when you talk about some of the drugs listed on the “drugs that cause hair loss” list, what can one really do when they have to take a certain medication? It is also important to note that while these drugs can cause hair loss, they are not necessarily the cause of hair loss for a lot of women. I am sure there are plenty of women and men who take these medications without experiencing hair loss as a side effect. So it doesn’t necessarily mean that since you took some of the drugs listed that that is what spawned your female pattern baldness.

A lot of women begin to experience hair loss for the first time post menopause. [click to continue…]

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Best Things To Do – The Bald and The Beautiful

by Y on October 7, 2007

Best Things To Do - The Bald and The Beautiful

Accept yourself, let it go and laugh. You’re not “suffering” from baldness. You’re suffering from sadness brought on by your attitude towards being bald.

I first exhibited Alopecia Areata in 1984 at age 10. My hair all grew back by age 14. At age 26 it all fell out again. May 2006 all my body hair fell out and that is where I stand today. (Pretty convenient on my legs and bikini line).

The biggest challenge that I’ve had since first losing my hair is learning to like myself despite my baldness. I still struggle with that sometimes. But learning to laugh at your baldness and allowing others to laugh at it
makes it so much easier to deal with.

If you are bald with no life threatening conditions, count your blessings. Yes, it sucks that I have to draw on eyebrows daily and that my head sweats when I wear a wig, but thank GOD I’m healthy.

So much of your hair loss is driven by your attitude. Choose happiness and choose peace. And don’t worry about hair – you get to sleep in 10 min. more because you don’t have to blow dry or curl it! 🙂

– The Bald and The Beautiful

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Dear The Bald and The Beautiful,

Thank you for writing and sharing your incredibly positive attitude with everyone. Everyday I work on accepting myself because I know with that, I will be able to take back control of my uncontrollable hair loss. It’s very hard, but I’m better than I was before. It’s so important to hear positive stories like yours. What you have achieved is so invaluable, you seem to have reached a place that so many of us strive for… self acceptance.

~Y

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Spironolactone – Hair Loss Story Question

by Y on October 6, 2007

Spironolactone - Hair Loss Story & QuestionHi! First of all I want to say that this is a GREAT forum/blog and I give you a lot of credit for starting it, sharing your stories, and wanting to help others. THANK YOU, and I really appreciate all you’ve done and gone through. Stay strong, continue helping others and you will get through this!

I want to ask you about your thoughts on Spirinolactone, but should provide you some context first. I am 28 years old and started losing my hair around August of 2006. I was under a lot of stress with my job and not taking very good care of myself nutritionally either. So, I started with a family physician and had blood work done. Everything came back fine. She recommended I take a daily multivitamin. She also recommended me to a dermatologist. I finally saw a derm in January of 2007 (it takes FOREVER to get in) and they did some additional blood work and told me to start taking biotin as well as the daily multivitamin. Again everything was “normal” and that was it. In March of 2007 my excessive shedding stopped and my hair felt better again. So I thought the vitamins and biotin were helping and
thought stress had a lot to do with it, too.

THEN, in August of 2007 I started losing a lot of my hair again and am continuing to shed excessively. This time around the hair loss is more noticeable and my scalp is much more noticeable than the first episode. I did just move to a new state, change jobs, sell our house, etc., etc. I thought maybe it was stress again but knew I needed to see a derm to be sure. I live in Winston-Salem, NC and they have an excellent dermatology practice at Wake Forest University School of Medicine and Medical Center. They have doctors that specialize in female hair loss!! So, I finally went early this week (after getting an earlier appointment because of a cancellation). I saw 2 doctors that were fantastic. They spent a lot of time talking through everything and came to the conclusion that it’s likely androgenic alopecia. BUT, they had me take every blood test possible in case it’s related to low iron, thyroid, etc. I’m still awaiting those test results. They also think some stress could be involved, but when they performed the hair pull test on me it was positive in some areas and not in others, likely female pattern hair loss (androgenic alopecia). I am supposed to start using Rogaine for men and they will prescribe Spirinolactone if all of my blood work comes back “normal.”

So, do you know much about this drug? Does anyone else on the site know? [click to continue…]

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Hair Loss At 20 Years Old, Sarah’s Story

by Y on October 4, 2007

At the age of 20 years old, I decided to go on birth control, so my doctor prescribed me to “Symphasic”. About 3 or 4 months later, I realized that my hair was thinning, I left it for about 6 months.. and then I went to my doctor, and she switched me to a different birth control – Yasmin. I thought it would be the answer, and I would be cured… but I was FOR SURE wrong. The hair loss got worse. Every month I lost a little more. It wasn’t until this past June that I decided to give up birth control all together and hope for the best. My hair loss began to stop a little, until around the middle of September, and that is when it started shedding more, and it continues to October, which is now. I keep hearing that it takes up to 6 months or more for birth control to get out of your system, and I HOPE that I will then grow my hair back, but what these women on the this site have to say is no hope.Does this sound exactly what you women have gone through? I am starting to get scared. I have had blood tests- and apparently there is nothing wrong with me. Should I be hoping that going off birth control was the best thing, and I will grow my hair back? I am so stressed about it, and like other women say… it takes up about 98% of my thoughts every day! I am crazy self conscious and i cant stand it any longer. if you could please write any comments or suggestions, it would be greatly appreciated!Thanks so much
Sarah

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Hi Sarah,

I read your story and I instantly was taken back to 8 years ago since your hair loss began around the same age mine did. I have to point out that I’m not a doctor, but here is my opinion on your situation. Honestly Sarah, I think you have a really really good chance of recovering from this completely, I’ll tell you why. The duration of time you were on the pill wasn’t very long, and also Yasmin is suppose to be a low androgen index birth control pill so I don’t think the damage it would cause would be as severe as say the pill I took, which was Loestrin FE, the highest (or at least was the highest) androgen index pill. I’m not sure about the Synphasic birth control pill because I’ve never heard of it, I tried to Google it and didn’t find much on it, however, on the upside I didn’t find anything good or bad on Synphasic, which I think is a good sign. When you type in the pill name I took “Loestrin” and “androgen index” or “high androgen” you’ll find TONS of stuff that point to women having hair loss problems, a lot of sites explaining it is a high androgen pill etc etc. I don’t even know why they prescribe it to women and I certainly don’t know why they had prescribed it me at 20 years old. I didn’t find anything like that about Synphasic, that’s not to say that the pill wasn’t bad for you, obviously it was, you had hair loss from it, but at least there isn’t an overwhelming about of negative stuff on it. I think that’s a good sign. [click to continue…]

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On The Bright Side – Hair Loss Story

by Y on October 1, 2007

On The Bright Side - Hair Loss StoryMost of you will smile when you read this, I hope! We all need to keep smiling, no matter what. My hair loss story began in August 2007 when I rubbed the left side of my head, through the hair (I have very long dark hair that I wear up in an “old-lady” bun. I immediately had the never before experienced sensation of feeling absolutely bald scalp on my own head! I didn’t panic, but I went to the mirror to see what was up. Well, what was out, not up, was the hair that had covered about a 5- inch square area of my scalp! Absolutely bald. I really don’t know when it fell out, for sure. I’m not much of a self-absorbed person vis-à-vis my hair, etc., and with it being so long, I just wash, dry, brush, and pin up.

Anyway, I did ask my doctor about it. She did a thyroid test- all OK- and recommended that I see a dermatologist, which I did NOT do. I read about alopecia online, and decided that there was no effective treatment. I have enough trouble being a woman and now a partially bald woman- without being a guinea pig too. Of course, the fact that my long hair and the style I wore kept others from seeing my problem helped in my decision. Perhaps lazy, perhaps stupid. I don’t know.

Over the past year, I developed an extension of the bald patch to the rear a little, not a lot, and also what seems to be an attempt by my hair to establish a bald patch right at the hairline. That will be a big problem if it continues. We’ll have to see.

Meanwhile, earlier this year, I decided to purchase a wig- just in case I woke up with NO hair at all! I got a dark auburn bob-style inexpensive wig, and it didn’t look too bad- although it didn’t look like “me,” either. Well, I hadn’t warned my husband, and when he came into the kitchen door, I was standing in plain view in the den, facing sideways to him. He opens the door, takes one look, and says, “What the hell is going on here?” He really thought some strange woman had invaded our home! After he got over the shock, he still didn’t like it, so I haven’t worn it- but I have kept it just in case. The good news is that about two weeks ago I noticed that the original patch now has some hair – about 1 inch long- repopulating portions of it. So that gives me some hope.

The best news is that I may be partially bald, but I’m healthy and not bald from the effects of treatment for some deadly disease. So I give thanks. It could be worse.

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Also Afflicted, Pat’s Story

by Y on September 29, 2007

I have had round patches of hair missing for several years. Fortunately, it grew back after months of rather inventive hairdos. There were years where I had absolutely no problem. Then the familiar sensation would return, a small bump pops up (like a bug bite), the hair falls out and a new bald spot is
formed.

Over the years, the spots have gotten larger. One of the ones I have now covers almost all of the top of the back of my head. This particular spot is finally growing hair (after a whole year) and contains a wonderful little tuft approximately one inch in length. It sticks out pretty good right thereon the top of the back of my head.

I am not a person who experiments. Many years ago I sought advise from a dermatologist who administered shots into the scalp. I’ve asked regular physicians, tried volumizing shampoos and conditioners, rubbed ointments into my head and decided, screw it. I’m not doing the potions and the lotions nor am I doing the pills or the shots. Mind you, I’ve been very lucky that it hasn’t fallen out to the degree that I have now seen in other women. The sad thing is that I have been dealing with it for so long, that I feel like it is just another part of life.

I had absolutely no idea it affected so many women! Perhaps a solid solution is forthcoming.

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Pat, Thank you so much for sharing your story. Reading the different stories I see that some of our hair loss situation’s our so very different, some the same. Depending on where you are in your hair loss, some women seem to have adapted better, others not, but at some point we all have known intimately the struggles and insecurities that hair loss brings out in the women it attacks. Your hair loss sounds like it is alopecia areata. Is that what you were diagnosed with? Like you said, I hope a solid solution is forthcoming as well. It’s long over due, and not enough emphasis has been put towards figuring out exactly what causes women to lose their hair.

Updated

Pat Writes: Yes, I was finally diagnosed with alopecia areata in 2001. [click to continue…]

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Helen’s Story

by Y on September 25, 2007

After years of driving myself crazy, using all sorts of products, including polysorbate 80, on my hair, I got a wig. The woman was wonderful, she put me at my ease and came in with styles and wigs that she felt would work. I kept with my natural hair color, very dark brown. It was 1987 and I was 49. Some of my hair showed at the sides of my face and under the back of the wig. That added to the natural look. About five years later, I was fully coloring my hair, my problem was on top, and decided to try a wiglet. I had a beautician cut my hair to fit and she showed me how to use it. Wiglets are lighter than wigs and you feel better because more of your hair is uncovered. The color of my dye and the color of their dye matched perfectly.

Now I am 69 and almost a year ago decided to stop coloring, even tho I knew getting a match would be difficult. After several mistakes, one too dark, one too light, to be put away for the future, I have found something that is fairly close. When I went for a haircut today, the girl did not know I had a wiglet on until I began taking it off. She was nice enough to cut my wiglet to match my haircut. [click to continue…]

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My Story by, Taylor, 17 Years Old

by Y on September 17, 2007

June 14th 2004. I bet I know what you’re thinking. “That’s when her hair started falling out” Right? Nope. That’s when I had my ability to walk taken away from me. It was a normal day, and I was training for a big national competition in Australia with my horse. I had been riding for 10 years before that day, and falling off was just another thing. No big deal. I had heard that you had a 2% chance of something going horribly wrong if you fell off a horse, and I’d never come away with anything more then a couple of bruises and some sore muscles until that day. I was now a paraplegic. Being faced with the fact that I would never walk again. Ever. That I would be completely dependant on a wheelchair for the rest of my life and have to learn all over again to do simple tasks like looking after myself. It was hard. Very hard. But not the hardest thing I’ve experienced.

Just before my 16th birthday, my hair began to fall out. Very slowly at first, just a few more stands then normal. But in the next week it became more and more noticeable. There would be hair on my pillow, in my sheets, stuck on my clothes, on the lounge, in the shower, absolutely everywhere. Handfuls of hair would painlessly and effortlessly come out just running my fingers through my hair. I used to sit on the bottom of the shower in shock, as I watched my hair run loose with the stream of water and watch the water rise as the hair covered the drain. I was petrified of brushing my hair. I wanted to keep the small amount of hair that I had left. I felt so ugly, so alone, like such a freak. I was a girl! A YOUNG girl. And here I was holding my hair in my hands crying and hoping to God that this was just a horrible, nasty dream.

But it wasn’t. It was real, and after a while I decided it had to go. I was sick of the torment of showers and having to brush knots out of my hair and end up brushing out hundreds of strands, having it cover the entire house and having no control over it. So I decided to shave my remaining hair off to raise money for the Leukemia Foundation of Australia. [click to continue…]

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Pictures of Hope, Beauty & Strength

by Y on September 14, 2007

Julie's Before and After PhotosJulie has sent me over her pictures of before and after pictures taken approximately 6 months ago. She was chosen as a model for Reprieve Hair, and these are the pictures from the shoot. Since her hair loss conditioned has worsened and her hair is very fragile, she can no longer wear it.
Julie, I just want to say how proud I am of you and how much I admire you for being able to be such a strong person, and for also being such a strong voice for women suffering with hair loss. You are incredibly beautiful inside and out. Through reading your story and through reading other women’s comments, I start to feel better, because I don’t feel so alone. I find that there is hope and that I may be able to accept myself one day. To move on and appreciate all I do have. So thank you. Read more about Julie’s Story

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