hair loss

So Sorry That I Took My Hair For Granted - Amber's Hair Loss StoryHello Everyone. I am so happy to know that I am not alone in my hair loss devastation. I am a 28 year old mother of four. I’ve been experiencing heavy hair loss and extreme changes in the texture of my hair since the pregnancy with my daughter 5 years ago. Much to my dismay, my doctors were telling me that I was pulling my hair back too often or that my hormones just needed to get back to normal or that the straightening process I had done had caused the loss. So for five years I have watched my very thick, very curly hair become thin and straight thinking that one day it would magically reappear. It was two weeks ago that I had a scalp biopsy and was diagnosed with andogenetic alopecia. To boot, I am losing it from all over my head, not just the top. My dermatologist is pretty cruel and just chuckled and said “There’s nothing you can really do. Use Rogaine.” I am devastated. My daughter has hair just like mine used to be and I’m actually jealous of her. I’m debating whether to have the fifth child that my husband and I wanted but I don’t want to spark any excess shedding episodes. I have started Rogaine as it is the only FDA approved medication for women but I am feeling very lightheaded and somewhat dizzy so I’ll probably have to stop. I realize like many of you that this has quickly become an obsession. I know that I am not my hair. But let me tell you, after four children, my body is beat. My hair is the only attribute I have left and I’m losing that now too. I’m at an incredible loss. I can’t imagine what it will look like when I’m 40. Please give me any feedback you can and I hope this post helps someone feel not so alone as this site has helped me tremendously.
Thank you,
Amber

***********************
Dear Amber,

You are not alone in your feelings and struggles. I wish I knew why most doctors are so insensitive and callus toward the women who seek out help for their hair loss. I can’t explain why they do it, but it is an unfortunate very common occurrence. Was your dermatologist by any chance a man? They seem to be the least understanding.Just like the birth control pills can somethings kick in the onset of androgenetic alopecia early so can the hormone shift of having children, sometimes there is just no rhyme or reason, but undoubtedly we are never prepared. There are other “treatments” used to treat women’s hair loss such as low androgen index birth control pills and aldactone (spironolactone). All hair loss treatments carry the risk of possibly igniting some extra shedding at first. It’s the whole, “has to get worse better it gets better type thing.” It’s all a very personal decision what a woman chooses to use to treat herself, and she has to fully understand the postives vs. the negatives. Hopefully in time there will be more studies done to figure out what exactly causes women’s hair loss and then with any luck a real solution for women’s hair loss will follow. [click to continue…]

{ 8 comments }

Desire To Be Bald - Gosia's Hair Loss StoryThe title may seem to be surprising.. but, actually, when analyzed accurately.. it is not. I have been an AGA sufferer for a few years now. and I AM SICK OF THIS SITUACION. What I want now is only “to have this situation solved one way or another. Either grow back or fall out completely. So that I can resolve it and move forward.” Based on my prior experience I know that grow back is impossible. You may say I gave up. Yes, I did. Because there is no point trying to fight with anenemy you don’t understand and one you are blind and deaf against. You will only go through better and worse times, being moody so that people around will not stand you anymore. Curing uncurable puts you in a perpetual state of false hope. You neither have decent hair nor a good replacement; You’re betwixt and between.I have had enough. Finished medical treatment and wait for so little hair to shave it off. Be beautiful for myself when totally bald. I can accept it. And being beautiful to people around who have no idea, when wearing the best available vacuum wig. Just hard times for me when the final hair loss comes. Wish me strength. I hope I manage.”I am literally a shell of my old self and I am quite frightened. Sometimes I just want to shave my head and get a full best quality undetectable wig so I don’t have to see anymore hair in the shower drain, sink, bathroom floor, back of my shirt, etc. I don’t want to have a partial replacement system on a clip, as it is just inconvenient.I don’t want to have a partial replacement system based on adhesives as I would never accept my looks with severe typical men’s baldness. I want to shave my head and become beautiful again. And I will.Nobody can understand me. But I do not care. This is only my life and my best times (I am 24)

*********************
Dear Gosia,

Thank you so much for writing your story. Your thoughts are my thoughts. Your feelings are my feelings. On more occasions than I can count I have wished for there to be some finality to this never ending hair loss nightmare. Some closure…anything. I’ve felt the torture, the decline and slow death of my self esteem tear away minute by minute, day by day and year after year. You reach a point where you throw your hands up in the air and say “if I’m going to be bald then fine let it happen all now and let me get on with my life, because this strand by strand thing is eating me alive.” [click to continue…]

{ 12 comments }

Women's Hair Loss Project Network LAUNCHED!The Women’s Hair Loss Project Network (community.womenshairlossproject.com) is the newest addition to The Women’s Hair Loss Project. It is place where women losing their hair can connect with each even further.

What can you do in the Network?

Create a Profile
Share Photos (of anything you like, doesn’t have to be yourself)
Create Your Own Journal
Search and Add Friends To Your Network
Leave Comments on Other Women’s Profiles
Option To Make Profile “Private” To The General Public.
Photo albums can also be set to private as well.
Only Members Can View Private Profiles and Albums
Chat – Real Time Private Discussion

I think the Network will be a good adjunct to The Women’s Hair Loss Project. When I post women’s hair loss stories I will be able to not only post and respond to them but also link to their profile on the network (assuming they’ve created one). It will allow us all to share a little more about ourselves and get to know each other better. If you already have your hair loss story posted on the blog and would like it linked to your profile let me know!Create Your Profile Now!Create Your Profile Now and Start ConnectingView Profiles Already Online at http://community.womenshairlossproject.com Please let me know if you need any assistance creating your profile or signing up, I will be happy to help you women@womenshairlossproject.com

{ 5 comments }

Cutting My Loses - Brenna's Hair Loss StoryAt 41, I gave my hairdresser free reign. She cut off everything but 1 inch of outgrowth in my natural color – grey. Under the lights in the salon, my scalp glowed just as brightly, but the white hair complimented the pink shine much better than the chestnut stained trimmings that covered the floor around the chair. There is no question in my mind that facing my reality – infertile, grey and balding at 41 – saved my mental health, and contributed to the end of my marriage. The disappointment in my husband’s face that day when I returned home from the beauty salon, showed me he could never accept me for who I was now, instead of wishing for the woman he’d met 15 years earlier. I knew that living with the truth was the only way for me, and that I would be doing it alone.

When my hair began to shed at age 31, I had thought nothing of it. It was so thick and wavy, I hardly noticed a difference, and simply passed it off as a slight change. By the time I looked in the bathroom mirror and realized the shiny spot on the top of my head was my scalp, it was too late. The Prempro I had been taking to mitigate the symptoms of premature ovarian failure certainly contributed to the loss, but because of the hormone changes from the POS, likely there would have been hair loss if I had not taken any hormones.

After denying the reality for a decade, mainly with new hairstyles and hair color, I couldn’t live any longer pretending to myself that nothing had changed. With barely an inch of outgrowth, I didn’t care if I looked bald when my stylist was done with me – I just wanted to have myself to look at in the mirror – whatever I actually looked like.

The divorce took 2 years – one year to finally say it, and one year to separate our lives and finances. [click to continue…]

{ 2 comments }

Want To Be A Support Chat Beta Tester?

by Y on January 15, 2008

Want To Be A Support Chat Beta Tester?Hi Girls,

I’ve been thinking of new ways to improve interaction between women who visit this site looking for hair loss support. I have added an online instant messenger chat feature to the site but before I make it public I would like some fellow Women’s Hair Loss Project Community gals to test it out first. If you you would like to try it out before it is made public send me an email at women@womenshairlossproject.com and I will let you know how to access it. After it has been released we will be having weekly chat support meetings at a designated time. I hope everyone enjoys this feature!

{ 1 comment }

It's Not Just Me - Women's Hair Loss Poll Results634 women have voted in the poll, “How Old Were You When Your Hair Loss First Started?” What may seem surprising to many, but not myself is that the highest number of votes are currently for the 15-20 age range with 133 votes. Second highest votes are for the are range 20-25, with 126 votes. But as you study the rest of the results you’ll see that the only conclusion that can be drawn is that hair loss strikes at any age, hardly discriminating. Here are the full results as they stand now:

15-20 (21% 133 Votes)
20-25 (20% 126 Votes)
40-50 (17% 110 Votes)
30-35 (16% 103 Votes)
25-30 (15% 95 Votes)
50-60 (8% 51 Votes)
60+ (3% 16 Votes)

I’m going to keep this poll running until it hits 1000 votes. I think it is very telling that we aren’t alone in this no matter what age we are. If you haven’t voted yet, you can find the poll on the right side bar, you may have to scroll down a little to see it. My vote, age 21.

{ 0 comments }

Hair Loss Drove Me To SuicideI found this article that was posted yesterday on the Mirror.co.uk site. It is about a woman whose hair loss nearly killed her. It is a very touching article so I’m reposting it here for all of the readers:

Shoving a handful of pills into my mouth, I washed them down with a big swig of vodka.

I didn’t even know what I’d taken – I’d grabbed whatever was in the medicine cabinet and hoped it would end my pain. Then, I called one of my friends.

“I’ve taken an overdose,” I sobbed into the phone.

My mum Teresa picked up the receiver downstairs and had heard everything.

She piled me into the car and took me to hospital, near our home in Bradford, West Yorkshire.

“Why?”

She kept asking. “My hair!” I cried. “No one knows what it’s like.”

Up until the age of 13, I’d been just like everyone else. Then, suddenly, my long brown hair started to fall out in clumps.

At first, it was just a few places, here and there. But, gradually, more patches began to appear. I tried covering it up, doing my hair in different styles, using hair thickening creams and sprays. But nothing worked. There was no getting away from it – I was going bald.

The doctors diagnosed alopecia. “We don’t know what has caused it,” the specialist said. “It could have been shock.”

One of my grandmothers has passed away and I’d moved house and schools.

But I’d never dreamed it would make me lose my hair.

Going to school became a nightmare. “Hey, baldie!” the kids would shout at me down the corridor. [click to continue…]

{ 30 comments }

Losing Hair At 27, My Hair Loss Story By SarahI started to notice a loss of hair density when I was 19 years old. At first, I thought it was because I moved to a dry climate, but after time passed, I realized that this was not the case. I had thick, natural curly, wavy hair when I was young. My hair loss has been very gradual, but I feel as though it has accelerated in the last three years. I don’t notice my part getting bigger I just feel loss of density all over my head. I’ve been to three dermatologists and have taken all the tests. Everything comes back normal except for my iron. (Side note: I was diagnosed with anemia back in 2002 and went on iron supplements back then.) My dermatologist advised me to go on iron supplements and spirnolactone. She said I won’t notice a difference in hair density for at least a year after taking the supplements. So far, it has been almost 4 months since I started taking the iron supplements and I haven’t noticed a difference. I don’t shed as much during the day or while I take a shower. However, I lose a lot of hair when I brush. I’d say 150+ hairs. She said that if the iron doesn’t work, that I probably have androgenetic alopecia and because I’m losing hair all over my head, hair replacement surgery is not an option. I haven’t had a scalp biopsy done. I’d like to, but my dermatologist didn’t think it was necessary.

I feel I should also mention my family history. My mother has a full head of hair and she is 63. My dad is just now at age 62, losing his hair, but it could be due to his thyroid condition. My bother is losing hair and he is 33. My grandmother on my mom’s side has hair, my grandfather, however had hair loss. My grandmother on my dad’s side had thin, fine hair, but my dad said he couldn’t recall seeing her scalp. My other grandfather had a full head of hair. So, hair loss is in my family.

With all this said, I’ve gone through a wave of emotions. [click to continue…]

{ 49 comments }

After 2 Years of Hair Loss, I Gratefully Found You - Rachel's Hair Loss StoryHi there. I can’t begin to tell you how grateful I am to find this site. After 2 years of suffering in silence, I found reference to you on web-med. My lucky day! I cried at the compassion and sympathy that I found on the very first page. Thank-you!

My hair loss started after I had some children sleep over that had lice. I didn’t suspect lice until my head had itched for 2-3 months. I thought that I was having a re-action to shampoo or conditioner. Then, I put a fine tooth comb through my hair and big ole honkers fell out. Disgusting! I did not use toxic chemicals to get rid of them or I would have suspected that. I used tea tree oil, lavender oil, etc and left them on my head under a shower cap for a week and I combed out the eggs with a nit comb. At about this time (coincidence?) I started to lose my hair. I went and got a perm to feel better and even more fell out and broke off. I thought that my loss was lice and perm related, but it just kept falling out. I went to a MD and she took ferriten and thyroid test. Ferriten was low and she was convinced that was the cause. I begged her to take aggressive action to get to the bottom of this, but she said no, that any other Doc would think ferriten.

Well, 6 months later ferritin is normal and I am still losing hair. I have lost at least 1/2 of my previously very thick and beautiful hair. My scalp is very visable and I even bought a hair peice. I wear it in a pony at the top of my head, but suspect that won’t go on for long as it is becoming very obvious.

I finally got the MD to give me a blood test(which I have to pay for because my insurence will not pay for alopecia!). The results of the 4 hormones were pretty normal. Prolactin. testestarone, FSH and DHEA. These were the ones that she wrote for me. I wanted others, but she said no. I needed to find another avenue, so I am now going to do an indepth siliva test which will show a comprehensive view of my post menopausal hormone profile, and not through this Doc. I now know that I need to go elsewhere. Next I will probably go to a dermatoligist to get a scalp biopsy and whatever. [click to continue…]

{ 4 comments }

The World's Best Ponytail Holder For Thin HairHi everyone, holidays are so busy… So many people to see so much stuff to do. I hope everyone has been enjoying themselves.

I have to tell you, I found the world’s best ponytail holder. I was having so many problems with all my current hair ties because nothing would hold my thin hair in a ponytail, all the hair ties would slip off and be a constant reminder of my hair loss. Every time I go to the grocery store I’m always looking in the ponytail hair tie section to see if I find anything, and I did!! It is made by “Goody” and called “Stay Put Hold” There is also one called “Slip Proof Hold” which is very similar. That hair tie gives a super tight grip to the hair and I can finally wear a ponytail comfortably without the band constantly falling out. It’s got a rubber feel with treads on it which keep it in place. This is a definite must have for anyone with thin hair, I bought 15 packs, and I’m certainly going to buy a bunch more. I found it about a week ago and kept meaning to write about it, but the holidays had me running around.

Looking forward to the new New Year, one thats filled with less depression, more happiness, more self acceptance and of course more hair 🙂 I have lots to write about and have received many emails from from so many women with personal hair loss stories which I will be putting up. I apologize for not writing as frequently as I usually do, I’ve been so busy with work and the holiday season.

Cheers to the New Year.

{ 6 comments }