Show & Tell Sunday – Video and Slideshow

by Y on July 1, 2012

A few weeks ago I put up a few photos of my new wig and then a short while after that I took them down for various reasons, one of which a family member had emailed me a link to my own site (this one) discussing an article I had written years ago and that “I” should check it out. I felt panicked that with the photos of myself on the site that this person would for sure, instantly, make the connection and realize this was my site, so I quickly pulled the pictures down offline. A lot of women where emailing me because they wanted to see the photos that everyone was referring to so I then put together a private gallery and emailed the link out to several women. Well, I’ve since come clean to the family member who I was concerned about and I want to share some more photos and video with everyone so that women can get a better idea of how the wig sits on my head and also those photos that where once in the private gallery are included in the video as well. So my apologies to those who have already seen them, that part will be a repeat for you. [click to continue…]

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Happy, Sad, Confused – The Emotional Hair Wearing Coaster

by Y on June 30, 2012

I love my wig, I think we’ve established that. But, now comes the rainbow of wonder. I wonder if… you know that rainbow.

As anyone who reads this blog knows I have always pointed towards wearing bonded hair as my personal end-all-be-all solution towards moving past this wretched hair loss nightmare. Many women are able to boldly make that leap, arms wide open and flinging themselves into the air only to find they have wings, and they fly with brave beauty and grace onto the other side and into bluer horizons. Others, like myself, stare off the cliff and look for the ladder, the rope, the bridge.. anything else. So I got a rope, no shame in that and am inching my way towards emotional freedom.

Wearing a wig is a process. Period. You have super highs and you have those “sometime” moments at the end of the day after wearing it for 10+ hours when you are thinking, “Get this off my head STAT.” Moments of realization that this hair beauty has to come off at the end of the night, and you are bummed that this hair isn’t more “part of you.” Then come the soaring highs, the ability to leave the house WITH hair, not just any hair but amazing hair. The ability to “do” my hair in 2 minutes flat, no longer a slave to furiously trying to battle with the blow dryer to make my crappy hair looks less crappy. I have peace of mind. [click to continue…]

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Twitter, Boobs, Wigs and Weight Gain

by Y on June 24, 2012

So after much hemming and hawing I decided in a very non decisive way to start a Twitter account for The Women’s Hair Loss Project. While I never started one before for various reasons, recently I have found myself out and about having funny and/ or interesting ( I think ) thoughts that would be great to share on a platform like Twitter. I also often run across interesting articles related to hair loss that I don’t have time to blog about, but would make for a perfect quick “tweet.”  I’m a private person, like an uber private person, so that has always kept me away from social networks, that, along with the thought of wondering how many women dealing with hair loss would want to “follow” a hair loss twitter page. I have no idea, and I understand completely if no one does. I did try and make the page as nondescript as possible making sure not to include anything “hair loss” in the name, website, icon or background. It is possible that the WHLP could be broadened by Twitter and perhaps more women needing help and support could find us. This is really more of a Twitter test run, because who knows, I could delete it next week, so don’t be surprised if go to the link one day and it says, “Page Not Found.” Here it is, with my lonely first tweet LOL: https://twitter.com/whlpnetwork

Now on to the fun stuff… boobs and wigs. Now how the heck did I tie these together? I’ve recently been thinking about why there is such a stigma associated with wigs, or any hair that is worn that isn’t the universally accepted, “extensions.” Women can proudly can get breast implants and even be commended for doing something for themselves, but talk about wearing hair out of necessity and you get looked at like you have 3 heads. “Why ever would you want to WEAR a WIG?” hummmm…. thinking of a reply, ” Oh it’s just something I’ve always dreamed about, ever since I was a little girl. I had hoped and prayed my hair would just started falling out when I was 21 and then I knew that perfect moment would come at 34 years of age when I would have so little hair I HAD to wear a wig.” How’s that for an answer? [click to continue…]

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Follea Lifestyle Wig: Hello! A Very Wiggy Week

by Y on May 27, 2012

This past week has been a busy busy wig week. Last Sunday I went to Milano Wigs in Los Angeles to buy the WiGrip. The WiGrip is this handy dandy little strap that ties around your head like a comfy headband and keeps a wig in place without the need for clips or a comb. Amen! I kid you not, this little invention is amazing. I’ve seen several other similar grips online, they all look the same and probably function exactly the same as well.

Whilst at Milano Wigs I was taken in by the massive amount of wig supply they had there, a showroom filled with a ton of wigs that you can just try on by yourself. At first I felt awkward, out of place and a bit timid, but pretty soon I was flinging those bad girls on my head left and right. I think the plastic wig head fumes got to me and I ended up purchasing 2 wigs, that quite frankly are likely not going to see a lot of wear time. The wigs are quality wigs, don’t get me wrong, but the color isn’t exactly right for me and they don’t look as good on me as my Freeda Wig (Rina), or my new Follea Wig… but more on that later.

I think what is pretty fantastic about Milano wigs is their partline, sharp and distinct, they look amazingly real. Also it doesn’t have that knotted tight hairline problem which I experienced with Rina. It lays quite flat and looks very real. I also found out that this shop does coloring, cutting and repair on any wig, not just wigs purchased from them, so I ended up taking Rina in to try and have the hairline knotty bundle smoothed out and perhaps be made to look more natural. I get her back next week, so we’ll see how that goes. I am thinking I might also have Rina colored to better match my hair color and also have some long side swept bangs put in.

I’ve been on a wig rampage, determined to find that perfect, ah hem.. “hair enhancement” aka wig. I was quite interested in seeing two particular brand of wigs because of their reputation for quality and awesomeness, Follea and Flora Wigs. Flora is located in NJ and also in NY and since I’ll be in that area soon I thought I would take the opportunity to set up an appointment with Flora which I did do, but ultimately ended up canceling it this past week because I bought a Follea wig and there really isn’t room in my budget for two wigs in this type of price bracket, but I’m still very interested in checking out Flora’s wigs at some point. I’m curious how it compares with Follea and what the pluses are to each of them. [click to continue…]

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Wigging Out! My Freeda Wig Purchase and My Super Highs and Super Lows in 24 Hours

by Y on May 18, 2012

This is so emotional that I am crying as I type this out. I don’t know any better way to sort through my feelings than just writing it all down.

Hummm.. where do I start? Well, I recently turned 34 and after living with androgenetic alopecia for 13 years, I decided to look into the mirror and say to myself, “When? If not now, when?” That question I posed to myself was in relation to asking myself how many more years of my life will I spend not being able to be who I really want to be, portray myself how I want to portray myself and to just feel comfortable in my own skin. How many more years will I play musical chairs at the dinner table to avoid the brightest overhead lightening or run past my reflection wherever it may appear? How many more years will I shutter at the sight of myself in a public bathroom mirror or think how much better I would look WITH more hair?  More hair, the old hair, the old me… so far gone it’s hard to remember that person, it’s hard to remember what it is like to really have hair. How many more years will I sacrifice to “just getting by?” I have lost way more than 3/4 of the hair I started with and I have been just working with what I have, albeit still being able to pull off a thin hair gal look most of the time. I think most people probably just think I have thin hair naturally, or at least I hope that is the image I give off.

I’ve just grown to accept the thin sorry wisps of hair that crown my head, all while the hairs continue to say adios to me throughout the day, falling here, there and everywhere.  What am I afraid of? What do I have to loose to just move forward and make the leap into wearing hair? Ultimately, for me, the holy grail has always been to wear bonded hair, which I would remove weekly for cleanup and reattachment. But, I’m way too much of a scaredy cat to just make that happen immediately, so I decided to get my feet wet first by trying to work with some human hair wigs. Wigs, oh my god! The whole thing is so confusing, this cap, that cap, lace, no lace, glueless lace, mono, multi-directional, clips, combs, velcro… time for some wine. [click to continue…]

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Working Out In a Bonded Lace Topper

by MalloryT on January 27, 2012

One of the questions I see the most on the forums is the issue of working out in a bonded lace system. I was planning to do a series of tests to put my system through the straits since getting it in July but life and my recruiting obligations got in the way. However, I have my full time post-grad job lined up and have been putting some serious work into working out since December 22nd. I’m planning to write a series of posts about taking my lace system through different workouts for informational purposes.

First System: Reprieve Integration. The Reprieve Integration sits on top of your own bio hair-there are tabs around the edge of the system through which your bio hair is looped to “tie” the system to the top of your head. This can only be done by a trained technician on the system. I don’t know what the base material is…it almost felt like a hard plastic-y mesh of sorts? I used to work out in this system last year and had a lot of trouble because it gets SO HOT that I could not bear to work out for more than 30 to 35 minutes. I think I hit 45 minutes max. Sweat head also affected me in close spaces…I really think it’s having all the bio hair underneath it. The plus side is that I was never concerned about the system coming off-it is “taped” but the tape doesn’t sit against your sweating scalp, they hold together the looped hair that binds the system to your head.

Lace Systems: I wear a silk top with all lace, no poly. The silk top panel is 4 x 4. I sweat through the lace except at the point of the silk top panel. I have not had any issue of the system being too hot on my head in any situation and I only start to “notice” it on my head if I go 11/12+ days without re-bonding.

I re-bonded my lace system last Thursday. Here are the workouts I’ve done to date (I’ve worked out every day). [click to continue…]

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Oh Baby… A Hair Wearing Adventure

by Cara on October 28, 2011

Most of you know me as “KatKat” or even the “resident topper expert” as I frequently give advice on toppers and how to wear them. I developed diffuse alopecia and chronic telogen effluvim four years ago and started wearing hair in my previous career as a pharmaceutical representative where I was judged by my appearance on a regular basis. I have worn hair through dating adventures and then under a veil on my wedding day. My topper and I have been through airports and dental surgeries, in wind storms and downpours, and on a cruise. But of all of the adventures I have ever had in my “hair,” none could prepare me for the events of my life this year.

On March 7, 2011, I gave birth to my wonderful son. After nine long months, I was so excited to meet my baby! Yes, my hair grew fuller while I was pregnant. However, what grew was just more bad, miniaturized hair — not “usable” hair. I discovered that I was so comfortable in supplemental hair that I would rather continue to wear it than resort to trying to fix my old, flyaway hair. I won’t lie, it was nice to see more hair when I took my topper off each night but that was the extent of celebrating seeing my hair come back.

Throughout my pregnancy I wondered about the day my son would be born. Would I have my topper secure enough? Should I just tell my nurses about my hair since we would be up close and personal? Would I have time to wash it when I went into labor? Should I wear a headband or a ponytail? So many scenarios played through my head. Deep down I longed not to care about any of it; but I did. [click to continue…]

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One Step Back, Two Steps Forward

by Y on October 7, 2011

In communicating with a fellow network member today I was reminded of some thoughts which I wanted to share with all of you.

Dealing with hair loss has been hard, very hard. I’ve felt it has robbed me of many years of my life because I spent so much of my 20’s hiding, making excuses, avoiding social situations and really feeling completely uncomfortable in my own skin. I placed walls around me and rarely would let anyone in. I was a stranger to myself.

With time… a lot of time, I became more accepting of my current hair loss situation. I no longer prayed for all my hair to come back, I really prayed for strength to deal with this hand I’ve been dealt and I prayed for the courage to take the next step towards moving on. With the passing days/months it did get easier to deal with my hair loss and as the years progressed, while I’d still slip back into my own self loathing and depression, my “down times” became shorter and my recovery times much faster. Most days I can stare at a pile of hair in the sink that used to render me a sobbing mess, and just say a few curse words and send the mess down the toilet. Au Revoir. Other days, it takes the wind out of my sail, but never to the extent that it used to.

Most of the time we speak of what “such and such as done to us,” but not nearly as often do we sit and ponder what “such and such” as given us. There is no question that hair loss took a lot from me (because I allowed it to), but it also gave me things… it gave me a deeper understanding of human emotion, it afforded me a whole new perspective on things and life, it handed me appreciation for many things I previously took for granted and it taught me to be more patient – albeit not nearly as patient has I’d like to be 🙂 It also showed me that I was stronger than I had previously given myself credit for. [click to continue…]

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Go Big Or Go Home – Longtime WHLP Member Shares Her Hair Loss Story With CNN

by Y on July 11, 2011

As women dealing with hair loss we often want to conceal the fact that we are enduring a struggle that we feel no woman should have to be faced with. It’s a secret, and for many of us, it’s a very dark one. It’s not easy to come out to friends or family, for fear of not being understood or sheer embarrassment. Which is why I was so proud to hear that Lisa, a longtime member of the Women’s Hair Loss Project, was coming out of the shadows and sharing her story in a big way – front page of the CNN Health section. How’s that for an audience?

The story is titled, “An agonizing secret: One woman’s story of loss.” It is an honest, and heartfelt inside look into the struggles of being a woman with this condition. Knowing Lisa, makes this story and reveal all the more emotional and amazing. Despite having understandable hesitation and reservations about “coming out,” she persevered. Being a woman who has essentially lived in hiding with this condition, only using an initial as my identity on this site , I’m in awe of what Lisa has done. Sharing her story brings awareness to women’s hair loss, and it lets other women know that they aren’t alone in this. We don’t have to be silent, we don’t have to keep it to ourselves. Sharing is healing – I believe that.

Lisa joined the WHLP in June 2008, and quickly became a beloved member of the community and a close confidant of mine. While struggling through the sadness, we often found laughter in making light of some of the idiosyncrasies of dealing hair loss, we shared more than our hair loss, we shared our lives – as many women do in the network.

I encourage everyone to visit CNN Health and read Lisa’s story. We often live in the shadows with hair loss, and it is a proud moment for us all when a woman steps forward and represents us all – our feelings and our struggles.

To Lisa: Celebrate today, and never second guess the amazing thing you have done. Be proud and feel strong. If you cry, make them happy tears! I’m crying happy tears for you. Your path is one I hope to take one day – accepting myself entirely as being a woman with hair loss and willing to stand tall and share that with the world. For now, I’m still that lonely initial, “Y.”  🙂 Much love to you girl!

I’ll be interviewing Lisa later this week about her decision to come forward with her hair loss story.

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Spironolactone – It’s Probably Easier To Obtain Vicodin Than Aldactone

by Y on September 24, 2010

So I’m sure many ladies have already run up against the issue of having difficulty in getting Aldactone (brand name for Spironolactone) prescribed to them. Not all doctors are aware that this drug is used to treat androgenetic alopecia, and most of the ones I have met refuse to prescribe it at all, or in a dosage sufficient to actually potentially be of any help.

After a recent visit to a local dermatologist I left feeling smaller than slug, completely deflated, misunderstood and humiliated. My current prescribing physician is not local, and I was hoping to find someone close to home that would provide me with the prescription I need to help keep my hair from falling out of my head.

A few months ago my fiance went to a local dermatologist, and while there he thought to ask if he prescribes Aldactone to female patients with hair loss.  The doctor stated a resounding “Yes,” and seemed to be fully aware of the potential benefits of it for hair loss and for hirsutism. So knowing this, I make a visit there in the hopes of leaving with a prescription for 200mg (100mg/ 2x day) of Aldactone, that is after all what I currently take. I even went to the appointment armed with my existing prescription bottle to prove that I am in fact currently taking this.

To make a long story short, the nurse and the doctor were completely shocked at the dosage, telling me “That is way too much!” and that they only prescribe 25mg, or tops 50mg. What? They then proceeded to ask me if I’ve ever had any blood work to determine what is causing my hair loss. Well gosh darn, why didn’t I ever think of that? I’ve only had every blood test known to man done a 100 times over. The doctor then continues to tell me that this is the culprit of my dry skin, when in reality I’ve had eczema and dry skin my entire life. I try and explain my situation, my 11 years of hair loss and that for 10 of those I’ve been taking Aldactone and that ceasing to take it now would cause a tremendous hair shedding, and at the thinness where it is now, that would leave me with basically no hair. I’m the first to admit that I don’t like taking this drug, I hate it, in fact I’ve written on numerous occasions that I feel like a prisoner to it. My saving grace is knowing that once I make the choice to wear a bonded lace hair system that I’ll ditch the meds and be done with it, but that time isn’t now.

The doctor then suggested we try 100mg. 100mg? I let the doctor know at that dosage my hair will shed. How do I know this? Last year I tried to wean myself off the Aldactone and guess what? My hair shed.. a lot. I guess I probably looked super pathetic and desperate in that doctor’s room since he decided to go ahead and have the nurse write me a prescription for it. The doctor leaves and a short while later the nurse who is in the room with me still, says “I don’t care what you say, you have to get off that, it’s not good for you” and she didn’t say it in a caring way, it was a stern rude way. Of course this is coming from the woman who is probably in her 50’s and has never lost a hair in her life. How easy to judge when you sit there with a full head of perfectly coifed hair. And my favorite part of the whole conversation comes next, she then says to me, “Well, what do you think is causing your hair loss?” Yes you read that right, that is exactly what she asked me in her cold harsh way. Well lets see, hummmm bad genetics? the Loestrin FE pill? A curse? You take your pick. I just told her it’s genetic, that’s it, nothing more to it. I can treat it, glue it, or let it fall out. Those are my options.

I could feel my face getting red, and my eyes feeling like the ocean was about to pour out of them. I couldn’t get out of there fast enough, once I got to my car I burst out into hysterical tears.

That day was just another reminder of how much suffering hair loss has caused me, it’s not bad enough that this is happening, but I have constantly been confronted with doctors that have no compassion or understanding and who fail to do one simple thing… LISTEN. On multiple occassions I have asked the various doctors I have seen to prescribe me the Aldactone and they all look at me like I was asking them for crack. Actually it probably would have elicited less of a reaction if I’d asked for crack. The doctors are usually aghast that I would be taking such a dosage, their reactions make me feel like I am taking arsenic.

Anyways this rant is something I had to get off my chest. I would love to get a list of doctors together that do prescribe Aldactone at the higher dosage levels of 100mg – 200mg / day. Does your doctor prescribe it? If so, please share the name and location of your doctor because I know I am not alone in my struggles to find a doctor that can support my hair loss treatment decisions without making me feel like a piece of garbage in the process.

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