Hair Loss And Medication- Vicky's Hair Loss StoryI’ve just discovered your site and I must say that i,m glad that it exists. This is my dilemma, I’m a 39 year old woman who is experiencing hair loss/shedding and thinning for the last year and a half. I’ve always had long thick hair so this hair loss is a BIG adjusment for me and a lot of people have noticed the change in my hair which of course is adding to my stress and my depression. What I would like to know is this, I took aldactone for a little over 2 months and had some side effects, but only really stopped it because I had an infection elsewhere and I had to get onto medication that contained potassium. The infecton has now cleared up and I’m thinking of going on aldactone again as my shedding has increased again and also I’m also having my period and its seems I shed even more during my cycle than any other time (or at least i think i do). Is it worth going on aldactone again? Is the increased shedding due to the stopping of aldactone? I was also prescribed Diane 35 and Androcur- but have read up on them and the side effects scare me. I’m also trying chinese herbs and a regrow lotion for the last 4 months which has slowed my shedding but not stopped it. I would like to keep what I have left and not take medication that in in long run will do more harm than good. Do you know anything about soya products and hair?Thanks, awaiting your reply.

Dear Vicky –

Thanks for writing. I think a huge consideration is exactly what side effects you were having from the Aldactone and that should definitely be discussed with your physician. You were on Aldactone for such a short period of time that I don’t even know if that is long enough for it to have really have had enough effect to cause shedding from getting off it. Please remember I am not a doctor and cannot give medical advice, this is just my opinion, but it makes more sense to me that the shedding at the 2 month mark could have occurred from actually getting on the pill. Most medication used to treat hair loss all have the possibility of causing increased shedding in the beginning, it can get worse before it gets better type thing and it occurs around that time frame.

When it comes to taking any medication side effects can be pretty scary, but all meds have them. For myself I try to weigh out the possibility of one of the potential side effects to the degree of distress the ailment is causing me, in this case hair loss. Hair loss for me 8 years ago was probably the worst thing in the world, no one thinks they are going to lose their hair at 21. So I was very willing to try anything I could to save it, even knowing that some trouble could occur down the line. [click to continue…]

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Unsure – Maria’s Hair Loss Story

by Y on December 10, 2007

Unsure - Maria's Hair Loss StoryI’ve read some of the other women’s stories here and felt compelled to share mine. I am almost 28 years old and am experiencing some hairloss. Today was the first day I actually talked about it, and cried about it with somebody (my mother). I have been too embarrassed and depressed about it to talk with anybody else. When you look at my hair I don’t think that I look like I am balding, but I lose so much hair every day and I know that my hair used to be so much fuller. I feel like it is going to keep getting worse and I am very worried.

I am in a relationship with the love of my life and I am afraid that if I continue to lose my hair he will not be attracted to me anymore. The worst part is that I am obsessed with my hair. Some of the other women have mentioned being obsessed with it and constantly touching it and looking at it in the mirror. It is so frustrating. When I wear it down I find hairs everywhere, on my shirt, on my boyfriend’s shirt, on my pillow…it is never ending!! I also find myself looking at other women’s hair and comparing mine or being envious of theirs (especially if they are older than me and have a thick head of hair). I’ve even gone as far as trying to keep count of how many hairs I am actually losing per-day because I am still doubtful that this could be happening to me, but I have to face the facts, the thin hair I have now is a far cry from the beautiful full head of hair I had when I was a teenager. I think it has been a gradual loss, but the past two years it seems to be falling out more and more. I started taking the generic BC pill for Ortho-tri-cyclen a few years ago and I am wondering if it could be from that. I want to stop taking the pill, but I am afraid I will get pregnant and then my hair will really start falling out from stress!!

I now have some doctor’s names that I am going to call and try to have some blood work and tests done, but I am afraid that there is nothing that can be done for me or that I will start taking things that will make my problem worse. When I spoke with my mother tonight, she said that she started to shed a lot of hair around my age too. In a way it makes me feel better because although she has thinner hair, she does not look like she is balding. Maybe my hair is just naturally thinning out. I don’t really know what to think, but I am going to be contacting some doctors and trying to get answers. I really feel the pain of the women (and girls) on this site and it does help to be able to talk to someone who understands what I am going through. I feel like everything is going so good in my life, but it can all come crashing down if I start to lose hair and suffer from low self-esteem.

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Dear Maria –

I am really glad that you were able to open up to your mom and tell her how you are feeling and how your hair loss is affecting you. The fact that your mom relayed to you that her hair began to thin around your age, but yet she still has maintained enough hair to not look like she has hair loss, is a really really good sign. It is not uncommon for women’s hair to gradually thin as they get older, it becomes an issue when it isn’t gradual at all, but very rapid and sudden. [click to continue…]

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National Women's Magazine Is Looking For A Woman To Tell Her Hair Loss StoryI was contacted yesterday by a national women’s magazine who is looking for a woman suffering with hair loss who is willing to share her story. The woman needs to be between 18-35 and willing to go public with her full name and photo as well. This is potentially a tremendous opportunity to really help further women’s hair loss. I declined for myself because I’m just not there yet in self acceptance of my own hair loss to reveal myself to the world. I wish I was, and I hope in time I will be able to proudly show my face and represent women with this disorder. Although I won’t be the “face” for this possible new story, I really want to help the magazine find a woman who is willing to share her story, name and face with the world. Since a lot of female hair loss sufferers read this blog, I thought I would put this request out there.

If you are interested, please send me an email with your contact info, brief (or long if you wish) story and photo and I will send it on over to my contact at the magazine. Email it to: women@womenshairlossproject.com

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How Important Is Hair To You?

by Y on December 6, 2007

How Important Is Hair To You?Awhile back I was talking with my fiance about what I would be willing to give up or do to get my hair back, if only a genie would come along my way and grant me this twisted exchange. Just my own silly thoughts and I’m curious to know yours.

  • I’d run 20 miles every morning at 3:00am
  • I’d would give up my pinky toes for the return of my hair, do we really NEED those?
  • I’d eat liver 5x a day
  • I’d accept some skin pigment ailment on my legs, I’ve always preferred pants anyways.
  • I’d give up TV forever
  • I’d agree to dye my “new hair” pink for the rest of my life.
  • I’d run 2 of the 20 miles I was suppose to run completely nude 🙂 okay maybe not everyday but for one day I could definitely make it happen. Although I’d probably be arrested, I’d have my hair back, yes!

All this is in jest and in fun, but really there is a lot I’d be willing to give up, swap or exchange or do to get my hair back. What about you?

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21 and have been losing my hair for years - Jessica's Hair Loss StoryI think I started noticing my hair loss when I was mid-teens. It was not that big of an ordeal at the time, seeing as I knew I was a stressed and busy teenager (I was busy at school ALL of the time). However, as the years rolled by, I began to lose more and more hair. I am now losing hair at an exponential rate and I have no idea what to do about it.

My hair is very thin at the crown and sides of my head.. so thin that I can EASILY see my scalp. I try to hide it, but I really have nothing to hide it with, save a hat. I have gone to a doctor and a dermatologist, and all bloodwork is normal and I have no skin problems which would cause this. I was on birth control once when I was 18 or 19, but that really didn’t cause me to lose any more hair than usual. I am at a loss.

I am usually not one to care about these kinds of issues, but it has consumed my thoughts to the point where there isn’t a day that goes by where I don’t want to break down and cry. I know that my lifestyle is not helping, but I can’t really change it without changing my career goal. I am a full time student and I work part time as a lab assistant. Outside of school, I spend a lot of time studying for the MCAT and doing other school work.. all signs point to stress, but I don’t know what to do about it. It would really help if there was someone to talk to or if anyone has any advice. I feel like I am falling apart…

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Dear Jessica,

I am curious to know if the doctors you’ve seen were able to offer you any type of possible cause for your hair loss? Women with hair loss frequently get back blood test results that “falls within normal range.” I know how unhelpful and frustrating that is because we want to point to something on paper as the identifying cause then work towards fixing it. Blood test results being categorized as “normal” gets to me, because what is “normal” for me may not be normal for another 29 year old and vice versa. So perhaps there is something there for all of us that seems to be consistently getting overlooked by physicians. [click to continue…]

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Oh the horror of being referred to as having very fine hairSo yesterday was suppose to be a nice relaxing Sunday. I had the day planned with my mom, we were going to go to the spa in the morning, have lunch and do some shopping. Well for my spa treatment I chose a massage. I told the massage therapist I didn’t like having my head rubbed, I don’t go into any explanation or anything, I just leave it at that. I think everyone can pretty much understand why I wouldn’t want my scalp massaged, I don’t even like touching my own head, I just tie in a pony tail and leave it there till I wash it.

So there we are, I’m feeling relaxed enjoying my massage and we are nearing the end when the therapist tells me he had another woman who told him she didn’t like her head touched either because she had a bad experience where her hair was pulled. He says, “I think it is because your hair is so very fine that you don’t like your head to be rubbed, it’s probably more sensitive.” UHHHHH. I felt so awful after that. Someone should have snapped a picture of my face because words can’t describe the utter shock and horror I felt. I don’t think he meant to be cruel and MAYBE he was saying fine as in naturally baby fine hair, but it hurt like crazy. Really put a damper on my morning. I tried to push past and just enjoy my Sunday with my mom, and I did, but I kept staring at my hair in the rear view mirror of the car, his words echoing in my head. It’s not often you actually get told to your face how thin your hair is **Sigh. I know it, I know it’s thin, but I don’t my reality being told and thrown at me by complete strangers, I have a mirror for that. Tell me I’m fat, tell me I’m short, tell me I’m too skinny, tell me you hate my clothes, but whatever you do please don’t tell me my hair is thin!

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My Story and What Helps - Karen's Hair Loss StoryHi, I started to lose hair about when I was 46. It freaked me out as one of my aunts wore a wig and my grandmother had very little hair. I went to a medical hair loss clinic and they said I had genetic hair loss and recommended hair transplants. I asked about taking finasteride (Propecia), which I had read helped men with hair loss and the doctor said no, it was not available to women. His assistant, however, said (when the doctor was out of the room) that they won’t give it to women due to pregnancy problems. I said I was menopausal and highly unlikely to have kids, but it was a no
go.

So I went looking for Hair Loss books and read as much as I could and found out that taking Saw Palmetto worked just as well as Propecia and without any side effects. It does the same stuff and can be enhanced with the use of a couple of other herbs. So I’ve been taking it ever since and my hair loss has really slowed down . I’ve stopped a couple of times and the hair loss increased – so I know it is working for me.

I take 160mg (standardized to contain 85-95% fatty acids and sterols) twice a day. I also take 300 mg of Biotin twice a day and that also seems to help. Both are available from a health food store and come in many brands. I take the cheapest Saw Palmetto. These supplements are often found in the section about men’s prostate health as they work for that too. Propecia was designed for prostate health and was then found, by accident, to also bring back hair growth lost within 2 years.It works on the androgen cycle which causes male hair loss and may also cause female hair loss. I don’t see a lot of research into female hair loss out there which is foolish as many of my female post menopausal friends are experiencing some hair loss now.

Perhaps this info might help someone else…
Karen

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Dear Karen,

Welcome to the site and thank you for sharing your hair loss treatment regimen that you’ve experienced success with. I often hear women say they taken biotin for their hair loss but I never really tried it myself. I do think I’m going to go to the vitamin store tomorrow and get myself a bottle. I looked it up on wikipedia and it stated that its uses are for “hair problems, cradle cap (seborrheic dermatitis), and diabetes.” Under hair problems it says, ” [click to continue…]

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What Can Women Do To Stop Hair Loss - Dr. Judith ReichmanAn article came out today on MSNBC.com discussing women’s hair loss. I think the article provides a good overview of hair loss so I’m posting it here. The question asked to Today Show medical contributor, Dr. Judith Reichman was, “I’m in my early 40s and I’ve noticed sudden hair loss. I’m devastated. Why is this happening and what can I do?” (The original article can be found here) Here is her reply:

Women don’t expect to lose their hair (unlike men), so when it happens it’s extraordinarily traumatic. We normally have, on average, 100,000 hairs on our scalp. And as evinced by our changing hair lengths, roots and visits to our hairdressers, those hairs grow; in fact, 90 percent of our hair is actively growing at any given time. Hair is the second fastest growing tissue in our body after (I’d love for you to guess) … bone marrow. To keep its place on your head, your hair needs the right conditions. (Note I didn’t say conditioner.) You may find that you’re unexpectedly losing hair if you impose restrictions on hair growth or if your genes are such that continued hair growth is not in your destiny.

There’s a simple test you can do to help determine whether you are losing hair, it’s just thinning or you are damaging it by abusive hair products or pulling it too tight (which can occur with braiding). Pull on several strands of your hair — do they come out easily at the root? If so, it suggests that the hairs are indeed “shedding” and have gone into what we call an excess telogen phase.

To explain this telogen phenomenon, I must first go into hair physiology 101. As hair actively grows, it’s in the anagen phase. Each hair is connected to a hair shaft (or follicle), which remains in its secure position in the scalp for three to seven years before falling out and being replaced by a new follicle. Once the anagen phase naturally runs its course, there’s a two-week catagen phase, in which the hair follicle dies. The hair then goes into the telogen phase for the next three months, during which time it falls out. Normally we lose 100 telogen hairs a day, but in certain cases (and this sounds like your situation), many, if not most, of the hairs go into the telogen phase. This causes alopecia (balding). The condition of overwhelming telogen loss is termed telogen effluvium; the anagen to telogen ratio has gone from its normal 90:10 to 70:30 or less. If I do the math correctly, this means you lose at least 300 hairs a day, compared to 100 hairs. [click to continue…]

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Hair Loss At 16 - Larissa's Hair Loss StoryHi, I was happy to stumble across your site. I’ve been living with hair loss since I was 16 and have finally begun steps to healthfully and happily “deal” with it.

My mother, father and younger sister are all faced with baldness. It’s most definitely genetic for me. Through out high school I dealt with the rude remarks from other kids and never felt entirely pretty. I started on rogaine when I was 16 and saw very little response, finally stopping it at 18.

I then began wearing my hair pulled back in a pony tail, but as my hair continued to thin I had to cover my hair with an additional folded scarf or bandana to cover my hair on the top of my scalp where it was thinning the most. I was extremely self conscious and had trouble being in public with out my hair strategically covered. When I turned 25, just this last March, I decided that I needed a change and bought my first wig because I wanted to wear my hair down. I’m not trying to fool anyone, and there’s still a lot to get used, but it seems natural enough that I can pass as a woman with hair. It’s just hard considering I don’t know any other 25 year old women who wear wigs. I just needed to take control and I felt I deserved for once, as a young woman, to feel pretty and feminine.

No swimming, no wind in my hair, no warmth of the sun on my head and face.
Those are things I really miss and hope to one day gain the self confidence
to enjoy again. I’m contemplating shaving my head completely and hope to one
day feel confident enough to do that.

I look forward to reading your’s and others’ stories and hope to find strength in the knowledge that there are other young women out there dealing with the same issues.

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Dear Larissa,

Thank you so much for writing and sharing your story with everyone. You wrote that you hope to find strength in reading other women’s stories, I found strength in reading yours. I admire women who find the courage in themselves to move forward and take whatever steps necessary to make them feel good, like buying a wig, adding hair or shaving their head. I haven’t reached that point myself, but I feel like I’m getting closer…Baby steps.

Like you, I also didn’t have any success with Rogaine. Is your family supportive? Are you able to talk to them about your hair loss. It is hard for my family to truly understand my hair loss no matter how hard they may try because most of them have all their hair. It seems I was the only one left without a chair when the music stopped… or dare I say, left without my hair 🙂 But seriously, it’s hard and I hate feeling uncomfortable around my own family. My mother’s hair started to thin when she went through menopause, but she still has more hair than me, and while it bothers her she doesn’t understand what it is like to be to start losing your hair at 21 and devastation it causes.

For myself, suffering with hair loss has taken so much from me and left me feeling alone. Being able to communicate with other women and read their stories has helped me tremendously. I want more than anything to be able to put a period on this part of my life and move on and I want to help other women to be able to do the same. Part of that healing is reading the hair loss stories of other women, knowing we are not alone in this. So thank you again Larissa for sharing your story with us.

~Y

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Thanksgiving Hair Day Rant

by Y on November 23, 2007

Thanksgiving Hair Day RantYesterday was thanksgiving and as most people do, I got together with my family (brothers, sister in laws, and parents) for the day. Anytime occasions like this arise I always get a little tense and uncomfortable because my family knows what kind of hair I used to have and its impossible not to notice that 3/4 of it is gone. No one says anything but I can’t help but feel it is what they are thinking every time they see me. I no longer share my hair loss troubles with them or anyone else for that matter. Back when my hair loss first started years ago I did talk about it, but it seemed that they could never really understand or sympathize with me. I always ended up feeling worse after having any discussion about it so I just stopped talking about it altogether.

Anyways, I blow dried my hair in the morning and used some defrizzing gel and mousse for volume (ha yea right) to try and feel better about the whole thing. I finished by smoothing out all the fly away hairs with a flat iron. Honestly it didn’t look too bad, but it felt like feathers, actually less than feathers. I hate that more than anything… that I can’t feel my hair. I once told that to another person, and they looked at me like I was nuts, further fostering my notion that speaking to anyone about my hair loss was utterly pointless. Unfortunately I wasn’t able to make it through the day with my hair down, it was too distracting for me because I was constantly focused on it. I made it to my mother’s front door and then out came the clip, I clipped it up and there it stayed for the rest of Thanksgiving. As a matter of practicality I would have had to have clipped it up anyways because my hair sheds so easily, it would have definitely been an unwelcome ingredient in the stuffing. When I was very young I always hated how my hair looked pulled back, and I thought to myself thank goodness I have a lot of it to frame my face… now I am forced to wear it up all the time, really… how cruel can life be?

Even with all my hair worries I did enjoy Thanksgiving and spending time with my family. I was thankful for being alive, still having hair on my head, having a great family and having the ability to communicate with all of you about my hair loss life. I very much appreciate all the support you have given me and the support you have given to other women on this blog. It’s hard talking to just anyone about our hair loss, so it’s nice to write to women who truly understand. I hope you all had a really wonderful Thanksgiving!

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