Hi everyone, just wanted to let you guys know I’ve been sick so I haven’t been able to post. Hopefully I’ll kick this thing the next day or so and be back. Don’t know if this has happened to anyone, but my whole boy is achy which is pretty typical of being sick, but my hair is achy too!! My head is very sensitive right now and touching my “hair” hurts.
Today is a struggle and yesterday was too. I was trying to leave the house yesterday, my fiance waiting by the door and I was upstairs struggling to make my hair look normal. It seems normal is no longer an option for me, and hasn’t been for quite some time. But yesterday I noticed that my V shaped deeply recessed temporal region had gotten worse. The recession is so deep it just about spans my whole side of my head to the back, it looks awful and is impossible to cover up. So there I was upstairs in front of the mirror, trying to re-tie my ponytail a million times, each one ever so slightly different… lower, higher, much lower… this hair over that one, clip here, clip there etc etc. I felt so defeated, I eventually gave up on trying to cover the deep V recession, lowered my head and headed out the door. That sort of sent me into a depressed like state which I unfortunately awoke with. But what are my options?… I can go back to bed and pull the covers over my head, but that would get old and quite boring after a hour or so, or I can just move on as I always do. I am much better at dealing with these “down” times than I was years ago. It seems hair loss has caused forced me to develop much better coping skills, so I guess that is a plus.
But I’m doing alright. I drank some coffee, took the dog for a walk and decided to write a post about this. I am incredibly good at finding hope when it seems there is none left, but I think that if “hope’ was for sale I’d have to purchase just a little to get me by today 🙂 Hope is what keeps me going. I don’t just hope for my hair loss to stop, but I hope that I get stronger and more accepting of myself despite the amount of hairs on my head. I hope that I truly realize and understand that I am more than my hair, and I hope that all this happens before I am a very old woman. So I will look forward and I will get on with my day, because I have no other choice, life is waiting at the door, and I best go answer it before it passes me by.
Dear Gracie -I mentioned earlier in reply to your comment that I would post a youtube video that showed some women wearing hair, in particular the second woman (blonde) featured in the video is wearing a “topper.” Different things work for different people and sometimes it takes a little searching to find the right thing for us. I’ve been thinking about you all day and what you went through, I’m so sorry you had that experience.
I’ve just discovered your site and I must say that i,m glad that it exists. This is my dilemma, I’m a 39 year old woman who is experiencing hair loss/shedding and thinning for the last year and a half. I’ve always had long thick hair so this hair loss is a BIG adjusment for me and a lot of people have noticed the change in my hair which of course is adding to my stress and my depression. What I would like to know is this, I took aldactone for a little over 2 months and had some side effects, but only really stopped it because I had an infection elsewhere and I had to get onto medication that contained potassium. The infecton has now cleared up and I’m thinking of going on aldactone again as my shedding has increased again and also I’m also having my period and its seems I shed even more during my cycle than any other time (or at least i think i do). Is it worth going on aldactone again? Is the increased shedding due to the stopping of aldactone? I was also prescribed Diane 35 and Androcur- but have read up on them and the side effects scare me. I’m also trying chinese herbs and a regrow lotion for the last 4 months which has slowed my shedding but not stopped it. I would like to keep what I have left and not take medication that in in long run will do more harm than good. Do you know anything about soya products and hair?Thanks, awaiting your reply.
Dear Vicky –
Thanks for writing. I think a huge consideration is exactly what side effects you were having from the Aldactone and that should definitely be discussed with your physician. You were on Aldactone for such a short period of time that I don’t even know if that is long enough for it to have really have had enough effect to cause shedding from getting off it. Please remember I am not a doctor and cannot give medical advice, this is just my opinion, but it makes more sense to me that the shedding at the 2 month mark could have occurred from actually getting on the pill. Most medication used to treat hair loss all have the possibility of causing increased shedding in the beginning, it can get worse before it gets better type thing and it occurs around that time frame.
When it comes to taking any medication side effects can be pretty scary, but all meds have them. For myself I try to weigh out the possibility of one of the potential side effects to the degree of distress the ailment is causing me, in this case hair loss. Hair loss for me 8 years ago was probably the worst thing in the world, no one thinks they are going to lose their hair at 21. So I was very willing to try anything I could to save it, even knowing that some trouble could occur down the line. [click to continue…]
I’ve read some of the other women’s stories here and felt compelled to share mine. I am almost 28 years old and am experiencing some hairloss. Today was the first day I actually talked about it, and cried about it with somebody (my mother). I have been too embarrassed and depressed about it to talk with anybody else. When you look at my hair I don’t think that I look like I am balding, but I lose so much hair every day and I know that my hair used to be so much fuller. I feel like it is going to keep getting worse and I am very worried.
I am in a relationship with the love of my life and I am afraid that if I continue to lose my hair he will not be attracted to me anymore. The worst part is that I am obsessed with my hair. Some of the other women have mentioned being obsessed with it and constantly touching it and looking at it in the mirror. It is so frustrating. When I wear it down I find hairs everywhere, on my shirt, on my boyfriend’s shirt, on my pillow…it is never ending!! I also find myself looking at other women’s hair and comparing mine or being envious of theirs (especially if they are older than me and have a thick head of hair). I’ve even gone as far as trying to keep count of how many hairs I am actually losing per-day because I am still doubtful that this could be happening to me, but I have to face the facts, the thin hair I have now is a far cry from the beautiful full head of hair I had when I was a teenager. I think it has been a gradual loss, but the past two years it seems to be falling out more and more. I started taking the generic BC pill for Ortho-tri-cyclen a few years ago and I am wondering if it could be from that. I want to stop taking the pill, but I am afraid I will get pregnant and then my hair will really start falling out from stress!!
I now have some doctor’s names that I am going to call and try to have some blood work and tests done, but I am afraid that there is nothing that can be done for me or that I will start taking things that will make my problem worse. When I spoke with my mother tonight, she said that she started to shed a lot of hair around my age too. In a way it makes me feel better because although she has thinner hair, she does not look like she is balding. Maybe my hair is just naturally thinning out. I don’t really know what to think, but I am going to be contacting some doctors and trying to get answers. I really feel the pain of the women (and girls) on this site and it does help to be able to talk to someone who understands what I am going through. I feel like everything is going so good in my life, but it can all come crashing down if I start to lose hair and suffer from low self-esteem.
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Dear Maria –
I am really glad that you were able to open up to your mom and tell her how you are feeling and how your hair loss is affecting you. The fact that your mom relayed to you that her hair began to thin around your age, but yet she still has maintained enough hair to not look like she has hair loss, is a really really good sign. It is not uncommon for women’s hair to gradually thin as they get older, it becomes an issue when it isn’t gradual at all, but very rapid and sudden. [click to continue…]
I was contacted yesterday by a national women’s magazine who is looking for a woman suffering with hair loss who is willing to share her story. The woman needs to be between 18-35 and willing to go public with her full name and photo as well. This is potentially a tremendous opportunity to really help further women’s hair loss. I declined for myself because I’m just not there yet in self acceptance of my own hair loss to reveal myself to the world. I wish I was, and I hope in time I will be able to proudly show my face and represent women with this disorder. Although I won’t be the “face” for this possible new story, I really want to help the magazine find a woman who is willing to share her story, name and face with the world. Since a lot of female hair loss sufferers read this blog, I thought I would put this request out there.
If you are interested, please send me an email with your contact info, brief (or long if you wish) story and photo and I will send it on over to my contact at the magazine. Email it to: women@womenshairlossproject.com
Awhile back I was talking with my fiance about what I would be willing to give up or do to get my hair back, if only a genie would come along my way and grant me this twisted exchange. Just my own silly thoughts and I’m curious to know yours.
I’d run 20 miles every morning at 3:00am
I’d would give up my pinky toes for the return of my hair, do we really NEED those?
I’d eat liver 5x a day
I’d accept some skin pigment ailment on my legs, I’ve always preferred pants anyways.
I’d give up TV forever
I’d agree to dye my “new hair” pink for the rest of my life.
I’d run 2 of the 20 miles I was suppose to run completely nude 🙂 okay maybe not everyday but for one day I could definitely make it happen. Although I’d probably be arrested, I’d have my hair back, yes!
All this is in jest and in fun, but really there is a lot I’d be willing to give up, swap or exchange or do to get my hair back. What about you?
I think I started noticing my hair loss when I was mid-teens. It was not that big of an ordeal at the time, seeing as I knew I was a stressed and busy teenager (I was busy at school ALL of the time). However, as the years rolled by, I began to lose more and more hair. I am now losing hair at an exponential rate and I have no idea what to do about it.
My hair is very thin at the crown and sides of my head.. so thin that I can EASILY see my scalp. I try to hide it, but I really have nothing to hide it with, save a hat. I have gone to a doctor and a dermatologist, and all bloodwork is normal and I have no skin problems which would cause this. I was on birth control once when I was 18 or 19, but that really didn’t cause me to lose any more hair than usual. I am at a loss.
I am usually not one to care about these kinds of issues, but it has consumed my thoughts to the point where there isn’t a day that goes by where I don’t want to break down and cry. I know that my lifestyle is not helping, but I can’t really change it without changing my career goal. I am a full time student and I work part time as a lab assistant. Outside of school, I spend a lot of time studying for the MCAT and doing other school work.. all signs point to stress, but I don’t know what to do about it. It would really help if there was someone to talk to or if anyone has any advice. I feel like I am falling apart…
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Dear Jessica,
I am curious to know if the doctors you’ve seen were able to offer you any type of possible cause for your hair loss? Women with hair loss frequently get back blood test results that “falls within normal range.” I know how unhelpful and frustrating that is because we want to point to something on paper as the identifying cause then work towards fixing it. Blood test results being categorized as “normal” gets to me, because what is “normal” for me may not be normal for another 29 year old and vice versa. So perhaps there is something there for all of us that seems to be consistently getting overlooked by physicians. [click to continue…]
So yesterday was suppose to be a nice relaxing Sunday. I had the day planned with my mom, we were going to go to the spa in the morning, have lunch and do some shopping. Well for my spa treatment I chose a massage. I told the massage therapist I didn’t like having my head rubbed, I don’t go into any explanation or anything, I just leave it at that. I think everyone can pretty much understand why I wouldn’t want my scalp massaged, I don’t even like touching my own head, I just tie in a pony tail and leave it there till I wash it.
So there we are, I’m feeling relaxed enjoying my massage and we are nearing the end when the therapist tells me he had another woman who told him she didn’t like her head touched either because she had a bad experience where her hair was pulled. He says, “I think it is because your hair is so very fine that you don’t like your head to be rubbed, it’s probably more sensitive.” UHHHHH. I felt so awful after that. Someone should have snapped a picture of my face because words can’t describe the utter shock and horror I felt. I don’t think he meant to be cruel and MAYBE he was saying fine as in naturally baby fine hair, but it hurt like crazy. Really put a damper on my morning. I tried to push past and just enjoy my Sunday with my mom, and I did, but I kept staring at my hair in the rear view mirror of the car, his words echoing in my head. It’s not often you actually get told to your face how thin your hair is **Sigh. I know it, I know it’s thin, but I don’t my reality being told and thrown at me by complete strangers, I have a mirror for that. Tell me I’m fat, tell me I’m short, tell me I’m too skinny, tell me you hate my clothes, but whatever you do please don’t tell me my hair is thin!
Hi, I started to lose hair about when I was 46. It freaked me out as one of my aunts wore a wig and my grandmother had very little hair. I went to a medical hair loss clinic and they said I had genetic hair loss and recommended hair transplants. I asked about taking finasteride (Propecia), which I had read helped men with hair loss and the doctor said no, it was not available to women. His assistant, however, said (when the doctor was out of the room) that they won’t give it to women due to pregnancy problems. I said I was menopausal and highly unlikely to have kids, but it was a no
go.
So I went looking for Hair Loss books and read as much as I could and found out that taking Saw Palmetto worked just as well as Propecia and without any side effects. It does the same stuff and can be enhanced with the use of a couple of other herbs. So I’ve been taking it ever since and my hair loss has really slowed down . I’ve stopped a couple of times and the hair loss increased – so I know it is working for me.
I take 160mg (standardized to contain 85-95% fatty acids and sterols) twice a day. I also take 300 mg of Biotin twice a day and that also seems to help. Both are available from a health food store and come in many brands. I take the cheapest Saw Palmetto. These supplements are often found in the section about men’s prostate health as they work for that too. Propecia was designed for prostate health and was then found, by accident, to also bring back hair growth lost within 2 years.It works on the androgen cycle which causes male hair loss and may also cause female hair loss. I don’t see a lot of research into female hair loss out there which is foolish as many of my female post menopausal friends are experiencing some hair loss now.
Perhaps this info might help someone else…
Karen
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Dear Karen,
Welcome to the site and thank you for sharing your hair loss treatment regimen that you’ve experienced success with. I often hear women say they taken biotin for their hair loss but I never really tried it myself. I do think I’m going to go to the vitamin store tomorrow and get myself a bottle. I looked it up on wikipedia and it stated that its uses are for “hair problems, cradle cap (seborrheic dermatitis), and diabetes.” Under hair problems it says, ” [click to continue…]
I want to first write that I am not a fan of hair transplants for women, I personally
think that most women with androgenetic alopecia are NOT candidates for
this procedure. Having said that, I get emailed all the time from women looking
for a good hair transplant surgeon.
If you are deadset on having a consultation, please visit the International Alliance
of Hair Restoration Surgeons. The IAHRS (http://www.iahrs.org)
is an organization that selectively screens skilled and ethical hair transplant
surgeons. Read
my thoughts about hair transplants here.